Mestinon doesn't usually do a whole lot for ocular symptoms. Sadly, you will likely need more treatment than just mestinon. The side effects do sound horrible on them ALL, but rarely does anyone have a real problem.

I know how you feel where your son in concerned. My dd was about 18 mos old when I first got sick. It was scary, and I don't really know how we made it through those first few years.

I recommend you have a face to face meeting with your doctor to discuss treatment options.

Good luck,

Missy