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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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Thank you so much everyone.
I'm home and relaxing. Okay, that's all I've done for weeks now - relax! I did manage to "escape" today - I went to the grocery store and video store late in the afternoon. A friend took me and I wore my mask and hat (I have almost no hair - I need to shave the rest now)....and I pointed to what I wanted and she took it off the shelf for me - so I didn't touch anything.
Well, now that my hair is definitely near gone, I am certain I did indeed have chemotherapy. Still can't "believe" it. Today I'm tired - but of course, that is probably because I went to sleep at 2:30am last night and was up at 4:15 so we could head to the airport at 5am...then flew for 5 hours. LOL. Okay, I guess that would make anyone tired, chemo or MS besides the point.
I was outside for a few brief moments today and it was quite hot today - and my vision didn't go out. This is a good thing, as before I left for the chemo, when I went outside in the heat, I'd go "blind" within a few minutes...but not today. Yippy. I notice some other small changes and it's nice. For instance, one of my MS symptoms was that I like never went to the bathroom - really, I'd pee in the morning, then before I knew it, it would be 9pm and I hadn't gone all day. I drink a lot of water during the day, so it's not from lack of intake. However, for the last week or so - I have been going several times during the day.
I met at least 7 people with MS having HiCy while I was at Hopkins. It's quite incredible really.
I will keep everyone posted.....but for now I wait and see 
~Keri
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