I am not sure where to post this but this seems a good place. I stopped coming to the forum for about a month after being told I did not have RSD by the Dr. giving me a nerve block. I went to the same guy that gave me the first 2 blocks that I had. The first was in my lower back not helpful, the 2nd time was right in my L leg which is where my RSD is located. I talked with my pain Dr. about sending me again as nothing was working for the pain. When I went the Dr. doing the block said he was going to do the lower back again. If I had no relief this time it meant I did not have RSD and that I had neuropathy instead. Well the block happened and nothing came of it. He was very excited to tell me I did not have RSD. I left the hospital very frustrated. My pain dr was on vacation so I did not have a follow up appointment for a few weeks. I was getting depressed thinking what am I going to do now. Things are not getting any better and now I am not sure what to believe. If I did not have RSD great. But the liklihood was small in my opinion. So I didn't think I should write on this forum during that time if I did not have RSD out of respect for you all. Well a visit to the pain dr. I have RSD no doubts. She said I have been following your case for two years now and I have seen how things change for me. She said she has a lot of experience with RSD. So she took a look at the med list again and upped the nerontin to 3=600mg a day. My last appoitment I asked her about it because I am not thinking right at work and it is causing problems. In this state I think I am doing fine and than there are things that happen that show me I might now be thinking okay in writing reports following instruction, or hearing the instruction right. I also have a hard time verbalizing sometimes. Most people would not know anything was wrong, but people around me everyday see a difference. She is taking me off of the neurontin and going to replace it with Lyrica.
The day of my appointment I was driving and had an attack of vertigo. I was lucky to be able to pull off and park my car. We called 911 and they took me by ambulance to the hospital. I was there for about 20 hours. I got sent home but could no longer walk without help due to the dizziness. I was out of work for 11 days. My boss is very angry with me. She doesn't like the absentism. I couldn't help it. I need to leave this place of employment. I had gotten a note from the pain dr. that I could only stand 5 min. at a time. I do job coaching. So this last week i was sent to job coach a person that works 4.5 hours a day in a warehouse. I can sit sorta but I have to be with them shadowing them. This person is Developmentally disabled so I have to help him in all of the tasks. I take the chair and sit when I can but I am walking the warehouse and standing with him. This seems to be fine with my boss. Urgh. I gave her information about 6 months ago on this disease and had her watch the tv video. She didn't seem to be too responsive about it. I just wanted to educate her. That you may not see it but it is there. The past week I have been on an 8-9 pain levels and nothing is working. I do all my tricks. I don't know what to do next and feel the frustration as you all have described.
If you were following my story I did graduate on June 21st with my Master's Degree in Special Education so I am now a certified teacher. That is brining on more anxiety though on how I can do that job. I can't decide if working with pre-schoolers is a better gig than working with older students. They each have a fair amount of walking and stooping bending with the position. I think I want to do some admin work and just write up student plans. IEP's.
Thanks for the vent and I won't not post due to some stupid dr. telling me I don't have RSD again. I know better now and I think most of us have gone through this misdiagnosis stuff in our journeys.

Oh and Ali thanks for being you. You inspire me as well.
jo