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Old 07-21-2008, 11:06 PM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
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dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Quote:
Originally Posted by Raglet View Post
Hi Billie

I just noticed you have Sjogrens - I do too, and have for many many years. It mainly affects my mouth and eyes. I eat a normal diet, just chew things well and drink water with meals (it can help with swallowing chewed food). Actually my biggest problem is caused by damage to my tongue (nerve damage) which makes it difficult for me to move food around my mouth and position my food for swallowing, My swallowing can be pretty uncoordinated.

You can get saliva pastilles, but they are pretty ickky really. But they do help.

Do you have any other CTD's ? I also have lupus and antiphospholipid syndrome along with my sjogrens.

cheers

raglet
I know this was addressed to another user, but I wanted to respond.

Someone suggested this to me, but I don't have dry lips or dry eyes. My mouth's dry however, but I wonder if this could be something else, or because I'm a mouth breather? I also have TMJ.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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