Junior Member
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Join Date: Aug 2007
Location: Ballston Lake, NY
Posts: 34
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Junior Member
Join Date: Aug 2007
Location: Ballston Lake, NY
Posts: 34
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Alissa,
I am glad you found this site. I understand how you feel-but try to educate yourself & be your own advocate. It is also important to be direct w/ your neuro. Keep the faith. I know it is hard. I was diagnosed in March of 2007 and at this point Mestinon is not controlling my symptoms enough. I cannot take steroids-long term and I had an awful reaction to IVIG. But remember MG affects everyone differently so keep that in mind. You are in my thoughts & prayers. Let us know how you are doing. This is a place of support and information(from people who really get it). Take care of yourself. Peace.
Nancy Lee
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