I had my Hopkins appoint today. The neuro doesn't think I have MG--they don't know what I have..but nothing straight forward of course. The SFEMG and posititive modulating Abs are non-specific b/c I also have a bunch of other autoimmune and inflammatory markers that are elevated.

They drew a boat load of blood and now I have to see their pulmonary and GI docs..I don't know how long that will take. My J-tube has been clogging or pulling out ~every 2 weeks and my docs down here want me to get one surgically placed...I was hoping to have a solution to this swallowing crap before it came to that.

I'm totally frustrated..and apparently there is nothing that I can do.