These episodes you have are one of my symptoms too. I have a lot more going on too, but it's interesting to read your experience and your interpretation that it's maybe a seizure. I had a sleep deprived EEG and they were unable to induce a seizure but since it doesn't happen consistently that may not mean much.

Have you guys had MRIs of your brain and C-spine? I have and am told they were normal so I am curious if yours are too.