Missy, I thank you so much for your input. No one explained to us the consequences. All I know is that it seemed to be our last hope. He has been on cellcept, immuran and lastly the cyclosporine and none of them helped. I still wonder, as this disease is so under researched that I suggested starting over again with the Cellcept, unfortunately I was met with negative responses. It has come to the point now that I/he will doanything for a simalace of a normal life for him. I lost my job because I believe my boss couldn't cope with his/my life of illness, hospitals ect. (boss is/was a Billionaire and thought I should take him to the best doctors, easy for him to say), the good thing is that I am able to be around to see what is going on, and since posting earlier this am - he feels like crap tonight. The roller coaster ride. I would go anywhere and do anything to help him.
He has been intubated 4 times since diagnosed 4 years ago. He is much stronger than I could ever be and I give you and all those with MG my prayers every single moment of my day! But one needs to pay the mortgage - so I must look for work soon unfortunatley. BTW I am picking fresh Maine Blueberries every day lately if any one wants some let me know, if you pick up the shipping i'll do the picking!!