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Member
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Join Date: Jan 2008
Location: Kansas
Posts: 971
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Member
Join Date: Jan 2008
Location: Kansas
Posts: 971
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Just got back from Kansas City. Had follow-up appointment with Dr. Lynch today. Initial appt. was July 3. Took films and CD's from 7 MRI's (2002-2008).
She compared past ones to current one. she also compared blood test results from July 3 to 2002 results. Symptoms and 2002 blood test results had led her to suspect CNS Lupus, rather than MS. However, current results looks more like MS to her, so, although CNS Lupus will reain a question mark and possiblty in the back of her mind, she will treat me for MS at this point.
Has decided that the Betaseron has not been effective, so she gave me several other options, including Copaxone, Tysabri, as well as some studies.
We decided to try Copaxone first, and hope for the best. I tend to be what I call "IV-imparied". Hard to find veins, etc.
Will continue to work through my neurologist in Wichita, since he is closer to home, so I will have him set up the Copaxone for me.
~ Faith
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aka MamaBug
Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
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