New Member
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Join Date: Jul 2008
Posts: 1
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New Member
Join Date: Jul 2008
Posts: 1
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SCS - stimulator experience
I may not be on exactly the right list, but perhaps my experience will be helpful to someone.
I had an ANS stimulator implanted for thoracic back pain (peripheral rather than spinal column) - both surgeries were more invasive than I had expected and I wished I had scheduled more time away from work for more than 1 week after the permanent implant. I think doctor's intentionally don't tell you what the recovery is going to be like??
Like others on this post, I also had trouble with the trial lead being pulled out of place - I went on a business trip flying to Boston - surprised they let me on the plane with wires coming out of my back and a big stimulator unit. The unit worked great on my way to Boston, but with the lead pulled out I was screwed on the way back!
It's true what they say - don't expect a 100% solution. My wife seems to think I'm supposed to be cured now and that I shouldn't need ice packs or still be in pain, what can I say - no magic bullet here!!
Was it worth it - I was just hanging on to be able to make it through a work day and support my family, with serious concerns I would have to become disabled. Now, I'm just managing pain with good days and bad days. If my battery ever dies I get a rude awakening for how bad things were before.
I use my unit full blast all the time and end up charging about 2 hours a day. I've broken about 4 different charging kits now tripping on the wires or bending them wrong - ANS replaces them quickly but I wish they were more hardy.
In case you are using an external TENS or interferential unit - the sensations are similar. They told me that the implant would be more powerful than the external units - it's certainly more convenient and practical than trying to keep the stickies in the right place where I can't reach, but more powerful, no. I would gladly have a second battery and unit installed to blast this pain with more power.
My doctor didn't even mention this option to me, but I know ANS also has an RF option with an external battery - if you struggle to manage the pain with an external TENS or interferential unit, you may want to take a serious look at this.
They tell you not to drive with the SCS turned on - I've been jolted once or twice in the beginning but otherwise I can't imaging driving without the SCS.
Good luck to all!
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