Welcome Rose...Nice to meet you. I'm sorry it has to be this way. I know you are in the UK and I've heard that when it comes to pain meds, different countries have different protocols/rules...but I would think if youre only getting two hours of relief, that a good pain doc would be looking at longer term options. Have they considered you for either a duragesic (fentanyl) patch or a morphine pump? I know a spinal cord stim is probably out of the question because your pain is so widespread that it would take so many leads, and a scs works best if the pain is located in only one area, but if it were to work with multiple leads, and the person implanting it had experience with full body rsd, it just may.

Have those options been considered for yoU?

Can you talk to us about your sympathectomy and how that worked out for yoU? obviously not well since you didn't heal from it. Did it work for any period of time at all?

So young...it happened to you so young. I feel so badly for you.

I think it's awesome that you aren't letting it get you down and you are going to university now though

Hugs
LisaM