First and foremost I am so sorry for your suffereing- it is so severe. And yes, I do have a freind that has RSD full body too(as I do)and has the severity of problems that you do.
I am glad you are getting closer to your date with dr. S- he is my doctor. You will probably never meet another physican with so much compassion. He is very kind. He can look at your instantly and see your pain, the source, understand it and begin to try to help you. He is a very talented neurologist, spent alot of his career teaching others.
So your heading in the right directlion for help. Do you have alot of burning , alloydina? Or have you passed that stage? The ketamine infusions help a great deal with that part of RSD. Keep us posted. Hoping the best for you, try not to despair- I know you are suffereing. Sincerely, CZ