Hi Bearygood,

My sister was being watched for MS for a several years, and she already had a dx of Chronic Fatigue/Fb. Many of her symptoms matched mine, including numbness, tingling, pain, Trigeminal Neuralgia . . . and since I already had MS, it seemed likely she did too.

Finally they found she had something called Syringomyelia, which is a condition where a cyst forms in the spinal cord. It is quite often dx with Chiari Malformation, but can be a stand alone dx as well. Fortunately she only has only the syrinx.

http://www.syringo.org/

I have a good link to the symptoms of CM, and you are right that it can be overlooked as Fibromyalgia, etc.

http://www.nfra.net/Symchart.htm

CM is still considered very rare, and my doc said he's never even had one patient dx with it, yet he has about 15 MS patients. I have heard of others on the MS forums who were ultimately dx with it though.

Thanks for the info.

Cherie