Quote:
Originally Posted by Erin524
I think what I'll do, is just at the end of my appointment on wednesday, is hand him the printouts of the information. Just tell him that I'm kind of interested in it, and want to know his opinion. I wont try to show off what I know about it.
Maybe, ask him if he thinks it would be something to try, and maybe he can get back to me later on it.
I have a feeling that he wont be open to letting me at least try it. If he doesnt give me a Rx after he's read about it, I could probably try and see if my regular doctor would let me try.
|
That is basically my recommendation, written on the summary page of that documentation. If we seem TOO desperate or demanding, they are less likely to be cooperative.
Like I said, it took 6 months before my doctor agreed to rx it, and by that point, I was a pro on everything there was to know about LDN.
I think it was more my LONG-term determination and tenacity that wore him down though.
Quote:
Originally Posted by Erin524
I looked at some of the stuff you sent me information about, and was hoping I'd see a medical paper that told about it. It all seemed more like medical company propaganda then something that would be published in a medical journal. Maybe I just didnt read everything on the links.
....
Does the LDN help some people with stiffness in the mornings? ...
I'd just like to see if the LDN could do a little symptom management to keep my piddly symptoms like spasticity and numbness from getting too horrible. If I could keep them piddly little symptoms instead of ginormous bothersome symptoms I'll be happy.
|
Although I relied on various sources to pull together that "risk assessment", it was never intended to be published information, ie. "propoganda". My doctor was very specific on what he wanted me to research and document . . . and that was what I provided him. It was only after I got my rx that I thought the information might be a helpful "resource" for others, and have occasionally sent it the link to others by private message. So far, anyone who was determined enough has gotten the rx, just by reading and fully understanding the information in my document.
At this point, it seems that you are probably not "sold" on the idea yourself, and that is ok. Personally, I wouldn't "try" something that I didn't feel 100% confident on, and I would research until I was convinced it was the right choice for me. There is no way a doc could turn me down once I have that conviction.
LDN's intended use is NOT as a symptom management drug. It may be that we get symptom improvement, and most people seem to, but that is not the reason I went on it. I went on it to try to reduce relapses and slow disease progression, and if I got the symptom management too . . . that was going to be an added bonus. I was lucky that it did work in that regard for me.
Some people do opt to "sell" it to their doctors for strictly symptom improvement, and no doubt it would be harder to convince them that it might work on the disease process as well. Whatever works to get the rx . . .
Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.