Quote:
Originally Posted by lady_express_44
That is basically my recommendation, written on the summary page of that documentation. If we seem TOO desperate or demanding, they are less likely to be cooperative.
Like I said, it took 6 months before my doctor agreed to rx it, and by that point, I was a pro on everything there was to know about LDN.  I think it was more my LONG-term determination and tenacity that wore him down though. 
Although I relied on various sources to pull together that "risk assessment", it was never intended to be published information, ie. "propoganda". My doctor was very specific on what he wanted me to research and document . . . and that was what I provided him. It was only after I got my rx that I thought the information might be a helpful "resource" for others, and have occasionally sent it the link to others by private message. So far, anyone who was determined enough has gotten the rx, just by reading and fully understanding the information in my document.
At this point, it seems that you are probably not "sold" on the idea yourself, and that is ok. Personally, I wouldn't "try" something that I didn't feel 100% confident on, and I would research until I was convinced it was the right choice for me. There is no way a doc could turn me down once I have that conviction. 
LDN's intended use is NOT as a symptom management drug. It may be that we get symptom improvement, and most people seem to, but that is not the reason I went on it. I went on it to try to reduce relapses and slow disease progression, and if I got the symptom management too . . . that was going to be an added bonus. I was lucky that it did work in that regard for me.
Some people do opt to "sell" it to their doctors for strictly symptom improvement, and no doubt it would be harder to convince them that it might work on the disease process as well. Whatever works to get the rx . . .
Cherie |
I'm actually sold on wanting to try it. I just am pretty sure that my neuro will not Rx it to me. He's an older doctor, and I just dont think he'll give me a Rx for it. I actually think I have a better chance to get my regular doctor to give it to me.
All the stuff I've read about it, stuff that you've said and things other people have said about it on several other forums that I lurk on have been nothing but good things about LDN. I just think my neuro wont want to give it to me because of the lack of any large scale trials for it.
I'm going to hand him a print out of some of the information you gave me before I leave his office today, and just hope that he'll call in a Rx for me. I have to go check and see if the compounding pharmacy here in town can make it..
Edited to add: Called the compounding pharmacy. They CAN make it! And, they've made it before!
So, at least I know I can get it locally if the neuro is willing to give me a Rx. The pharmacist told me that it's about $70 for 100 of the 4.5mg dosage. She didnt know what the lower dose price was, but I'm pretty sure that I can afford it. The pharmacy is a cash only/credit card business. They dont do insurance. But, at least I can get it there.