I've taken Cellcept for years, not that it does much (if anything) for me. I am a very difficult, unusual person with MG (MuSK MG).

Recently, the FDA has issued a black box warning on Cellcept. Seems some folks are coming down with PML (activation of JC virus that lies dormant in most of us) which leads to demylelination and usually death. I've heard of at least one MG clinic that no longer gives out new prescriptions of Cellcept to patients because of that and watches the patients already established on it very carefully.

I suggest you do a lot of research online (easy to do a search on "Cellcept PML"), discuss with your doctor, and think hard about it. As for side effects I've personally experienced---diarrhea is the main one. I take an immodium every single day to keep that under control. I am definitely considering getting off of the Cellcept, but wonder what's next????

Good luck with your decision.

Missy