Yeah, Erin, I had MS-trouble from my tooth infection last year too. Glad you are making improvements since starting to take care of this issue. I did too.

I'm glad to hear that you do not feel belittled or intimidated by talking with your main healthcare provider. That is valuable.

I guess what frustrates me is that they always seem to have the final word on what they will "allow" us to try . . . even if there is no logical reason not to try it. In the case of LDN, it's not like there are known risks, or previously reported serious adverse events to take into account. They just don't know anything about it . . . but if they researched it, they would. It's that simple.

My neurologist was the same when I first asked, actually. Since then, I know the research center has rx'd to many people, and no doubt it has not worked on some. I talked to a lady the other day who got it from our research center, and he had rx'd it with her Rebif (but had not mentioned that interferons and LDN may conflict/not work together). Obviously he hasn't done his homework.

The bottom line is it is up to us to thoroughly understand the complexities, then fight for what we believe in. I have found no "logical" reason for a doctor to refuse to rx it though (so long as it doesn't conflict with what we are already taking), and lots of good reasons to give it a try.

Cherie