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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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I confess to knowing little....
...of the national orgs and would like to ask what each is like. Organizations tend to become hidebound and self-perpetuating. I have no wish to take part in that. But sometimes they are lean and hungry and, even, aggressive.
So, tell me- Which ones are willing to upset apple carts? Which are oriented toward YOPD? If you want, you can PM me and I will just report the general flow in an anonymous manner.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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