Jean - you are kidding me that some people got upset about your tulip stuff! GRRR!

and Paula, I do a lot with PD advocacy but DO NOT consider myself a brown-noser (I looked in the mirror this morning - no sign) lol.

Everett - I don't think going with "the one who would most support YOPD" is the best way. That would fracture us even more. I think there is surely ONE group that could offer support for PWP no matter what their age. Neither would be wise for the majority of the board of directors be PWP. ; I'm afraid nothing would get done. And honestly, caregivers have much to contribute to our needs.

A few years back there WAS an effort to merge the PDF (New York) and the NPF (Florida) into one big org. That would have made one powerful group who would be able to tackle about anything. But alas, it fell by the wayside to politics.

But seriously, everette has some good strategies - would it be possible for a small group of PWP's to initiate change at that level?

Peg