 |
In Remembrance
|
|
Join Date: Aug 2006
Posts: 3,772
|
|
|
In Remembrance
Join Date: Aug 2006
Posts: 3,772
|
OK, then, how about this....
How about an independent board of PWP who rate the organizations based on defined criteria and publicize the results annually and to the hilt? Maybe work in a sliding scale to recognize and encourage the process of change. And do it on a curve so that some group is always at 100% so that we don't alienate all of them.
Some criteria- Money raised. Overhead. Amnt to research. Ratio of the two. Some sort of innovation score. Pick the biggest venue each year and hold a press conference to announce the winner. Release the list and let the media figure out the losers.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
|