|
Senior Member
|
|
Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
|
|
Senior Member
Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
|
Good idea
Carey,
I like your idea about an independent patient advisory board!
quote from Carey: "I've been thinking along these lines; I think we need an independent patient advisory board; one way to start is an alliance of patients who are serving on org boards now, combined with some who aren't. That way, the orgs could be informed. I serve on the PDF patient advisory board, and feel strongly that I represent all patients that can't be there with me."
__________________
Jean B
This isn't the life I wished for, but it is the life I have. So I'm doing my best.
|