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Old 11-02-2006, 09:54 AM
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Maxwell'sMom Maxwell'sMom is offline
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Join Date: Oct 2006
Posts: 371
15 yr Member
Maxwell'sMom Maxwell'sMom is offline
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Join Date: Oct 2006
Posts: 371
15 yr Member
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The place i went to before was an actual "Sleep Disorder Clinic"
So they should have been on the ball much more than what they were. I think some of my tests leaned towards narcolepsy, and then it went from there. But they did believe I have Narcolepsy with Cataplexy? not sure of the spelling.

I do feel a little bad, cause I must have been looking at him, like, Who are you, and what are you saying?? My husband wants to call the old place and complain. They rotate doctors so much there, that I don't know if it would do any good.

I too am glad he wants to confirm it. I don't want to start new meds, or have another weird diagnosis with out it being confirmed to the max. But after all he explain, it makes a lot of sense to me.

My eldest daughter said she remembered my neuro once mentioning that I could have it in addition to MG, but since I was tested with the sleep study, and using the bi-pap, they must not have found anything. Little did we all know. they never sent her anything. I mean, shouldn't the neuro be notified?

Well, I'm starting to vent again, and I'm beginning to ramble, so I'll close
Love lizzie
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