I'm traveling by myself right now in a city where I know 2 people (and both of them are out of town). My husband is on a plane right now to Japan for 10 days (so he can't be reached). I'm SO worried about the Tysabri news. I've had one dose of Ty. I'm due for the second one on the 11th of Aug. I guess I will need to call my neuro to see what to do now. Do I stay on it even though the risk of PML is higher now? I had no side effects from it, the convenience of the drug was great. Rebif and Copaxone made me utterly miserable and unable to function at my job. I thought I had found the golden ticket with Ty. Today's news is just a reminder of how there just seem to be no good options with this disease and things can change in a second-- quality of life v. side effects (includ. ones that can kill you), unpredictability, fear of the future.

It will be 1 year since the diagnosis in early Sept. Currently I have no MS symptoms and only had a very mild case of optic neuritis and some dizziness when I was diagnosed. So life should be great right??!! Yet I am still having problems adjusting to the idea of this disease. Just the "existence" of it is putting a strain on my marriage (which is only 1 year + 2 months old). Expectations at my job are so high. And then I beat myself up because I can't seem to get a grip on things even though on the surface life looks so good.

The Ty. news just threw me for a loop. And I'm totally alone right now. I can't reach my husband by phone and I can't go out with a friend. Does any of this stuff ever get easier?