Carey,

I like your idea. Everything I've ever been involved in through organization of any kind takes longer tho and this is the obstacle we always will face. Which isn't to say we don't need any organization, but as a friend said earlier tonight - you can make contacts and get to know people in the right places - forever. Allow yourself [rhetorical] some appreciation for what you've done, then move on and accomplish the real mission. which is new territory for patients.

If we wait for that magical invitation to the "table", I'm afraid we wait in vain. Its almost rhetorical. We need patients with money to form our own tables. The orgs should help.

We've been focusing on reputations. We need a list of those who have produced tangible results.

two more cents
paula