the big organizations get and crave money because they are owned by bigpharma!
the only PD organization - I will back will not take a dime from bigpharma -
and in doing so keep the organization from becoming the property of big pharma...
PRO - is the only parkinsons resource org. I would ever back.
I have seen the lavish money spent on the hotels and even went to a few, from the beginning of my advocacy in 2000 - 2004
and I saw the real people with hurting loved ones - giving big checks to
what? ---the cure?
well evidently it went for someones rolls royce payment?
I saw alot of doctors being wooed by gold, or the pharmaceutical gold standard?
tweaking meds? sounds like a Bull crapola reply?
we know better -
Quote:
Originally Posted by paula_w
Rick,
I imagine some will race to answer this one or else run the other way. The orgs are caught in the middle of a changing world where patients were largely excluded. Their boards can tie their hands. Once again, it depends on who the group is who is appealing for help - if it's not a popular one, the group will be ignored.
Just think on this a moment - none of the PD orgs acknowledge Monkeys in the Middle - who are they afraid of offending?
The orgs are changing and becoming more patient oriented. But you can see by what they ask of patients that they don't completely understand the illness. And gobs of their money also comes from pharmas and biotechs.
paula
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