For the past week I've spent much of the time crying like a baby because of the severe nerve pain. Finally spoke with my neuro and being I have such bad reactions to so many meds, it was a challenge. Couldn't go with the narcotics being I take LDN, so he's trying the generic of Tegretol. It's mainly used for seizures, bi-polar, etc., but also for nerve pain. I've taken two 1/2 tablets so far and am feeling the most "pain free" in years. Seems to help with the spasms in my legs and back too.

Hope this doesn't "jinx" the results by sayng they're good so far!! There can be some really bad side effects. Has anyone had any experience with this drug?

My neuro did agree that I have Central Pain Syndrome -- damage in the brain, brain stem and spinal cord from the years of MS.....18 diagnosed and 14 years before that when Optic Neuritis struck twice.

Seem more tired, but worth it to finally have some of that "electric shock" pain gone for awhile. Isn't this disease a "hoot"? NOT!!!!