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Old 08-01-2008, 09:01 AM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
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It might be interesting to look at the experience of the gay community and their struggle to get society to deal with AIDS. A place to begin is Wikipedia's entry on the book "And the Band Played On." One thing they learned is that being nice gets you a good eulogy.

Organizations exist first to perpetuate themselves. Allowing patients within the walls is not high on their list. This is doubly so when staff runs the show as is often the case.

Don't be afraid to embarrass someone so long as you are simultaneously praising someone else.

Here is a good site that rates non-profits-
http://www.charitynavigator.org/inde...search.results
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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"Thanks for this!" says:
paula_w (08-01-2008)