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Old 08-01-2008, 10:22 AM
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jeanb jeanb is offline
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Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
15 yr Member
jeanb jeanb is offline
Senior Member
jeanb's Avatar
 
Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
15 yr Member
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Yesterday I spoke about Parkinson's disease to a Kineseology (sp?) class at Arizona State.

As part of my presentation, I mentioned promising treatments that had ultimately failed in clinical trials:
  • GDNF
  • SPHERAMINE
  • KW6002

These were treatments that I KNEW had worked for some pwp, but had still ultimately failed in the trials. I ultimately broke down and wept as the class asked me questions.

Some time ago I had given up on there being a cure in my lifetime, but now I am rapidly losing hope for getting new treatments.

I write this because the topic and discussion are important to us and all pwp.

We can make a difference.
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Jean B

This isn't the life I wished for, but it is the life I have. So I'm doing my best.
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