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Old 08-01-2008, 12:40 PM
jcitron jcitron is offline
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Join Date: Sep 2007
Location: Haverhill, MA
Posts: 480
15 yr Member
jcitron jcitron is offline
Member
 
Join Date: Sep 2007
Location: Haverhill, MA
Posts: 480
15 yr Member
Default Question about medication increases.

How long do any of you get out of an increase in sinemet or any of the other medications?

It seems to be about 3-5 months now where as before I got almost 8 months. The reason why I'm asking this is I feel that I'm not feeling the full effects of the meds like I used to. It's as though I'm heading back to the way I was before the increase in March, and after such a short period of time. This has me concerned that this may not be the idiopathic PD, but something worse like the P-Plus diseases. Thus, her labeling of this as Parkinsonism with spasticity and dystonia.

My piano playing is still pretty good with good and bad days, but overall I'm stiff and sore in my bicep muscles and my legs, and the dystonia has been hitting me more in the night and early mornings. My balance isn't as good as it should be either, and I keep getting dizzy spells. I had one of the "head twirling" ones where it felt like I was being pulled over to the left side while sitting at my desk at work the other day. This nearly caused me to fall out of my chair. I promptly put my head down on the desk and let it pass.

I know that this is a designer disease, but this design is not to my liking!

John
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