I am new to RSD but I sent him a message as well. I would like to share that message with you all.



I'm apart of an online support group for RSD. Read a post that someone emailed you about RSD. This is a real disease, very painful. I'm new to RSD have only been diagnosed with RSD since April 08. My RSD was caused by an injury at my job. Since the problems I've had with a doctor I was seeing for my injury, and stress from everyday life, I believe my RSD has spread to my right ankle as well. My right ankle has the exact same symptoms/ problems I've had in my right wrist since a week after my injury. RSD is not that well known and it needs to be. I am still working, but was dropped down to 10 hours a week. Its a big scare to drive to work since I have to drive 45 mins one way to get there. But when I'm at work, people treat me as if I'm faking my injury, and just don't understand this disease. Some people are nice to my face then when I'm not there they start to talk crap about me. I tell them every time I work if I could I would switch with them for one day, just so I could be normal again and so they could feel what I and a whole lot of other people go thru each and everyday. Doctors also need to educate themselves on this disease. Because the doctor that diagnosed me did very little treatment for me, and expected after 2 weeks of treatment that my RSD would be gone. RSD doesn't go away, even if I could get it to go into remission its still there. RSD spreads and when this ugly monster has a hold of you it doesn't let go and will go to where ever it chooses to go. I know that there are people who have dealt with RSD a long time, I'm just hoping I have enuf strength like them to make it thru. I have to have the strength I have 2 beautiful childern that are counting on me. The message of RSD needs to get out. Please don't let more people be ignorant about this ugly monster.