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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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The irony of that whole situatuion is that I called my neuro to have him up my Prednisone and he decided that at this point plasmaphoresis would be more helpful THen I asked him him if I would have a PICC or a central line and he told me PICC so that's what I was expecting - not a cath in my jugular - I tell you I went a little crazy for a few days after that - screaming @ my hubby (cuz' he knew), being mean to nurses, crying, and not sleeping - I was like a mad woman - I'm so ashamed.I've just always had a fear - ok phobia - of needles and since being diagnosed I've been bled dry...........OK, enough about me - how are you? I'm sorry to hear you're feeling rough - that stinks. Your idea of selling mg on ebay was funny - I wish there were buyers out there .Maybe the heat is effecting your mg..............
Is it super hot there? We've had a huge heat wave here in Texas, and I think that's what is making our mg worse - my neuro won't let me go outside in the heat......... When you get a chance, drop me line and let me know how you are feeling.......Take care! Erin
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Originally Posted by redtail
Hi Erinhermes
sorry to hear you're feeling down . Its frustrating when you do so much, or have so much done for you, and you don't get any results!!
I'm going through a period of my mg being bad, and don't know why, and dont want to tell my neuro, cos he'll just want to up my prednisolone!!!! I still think my idea of selling our mg on e-bay is a great idea , if only we could all dislodge it from ourselves we may have a chance 
Hope you soon start to feel a bit better, take care 
redtail |
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