Hi,

Some facts about me: I'm 45, diagnosed 9 years ago, symptoms for 10. I had thymectomy in 2000. It didn't work, clearly. A little hint: They hardly EVER do!

I also have lots of hormonal/gynecological issues. Attempts at manipulating the hormone levels have ended in disaster every time.

How long ago were you diagnosed? If it's been less than 2 years or so, everything you are going through emotionally is "spot on." It takes some time to grieve the good life we've left behind and make peace (I still won't say accept) with the "new you." The new you may very well be chronic. However, you may be lucky as I was several years ago when I had 2.5 glorious years of being symptom free. Of course I've had 4 years of hell since, but I keep striving to achieve that perfect balance once again. It's tough because it isn't working!!!!!

The needle phobia really seems to be one of your biggest issues. I suggest you get some help for that, so you won't be living in fear so much all the time. I have a similar phobia but now, believe it or not, I access my own port at home and do my own IVIG! So, I am living proof that it can be overcome!

Hang in there....

Missy