--your current diagnostic limbo (and what you have does sound a lot like it could be MS) may be more a function of the current diagnostic categories than your symptoms.

Many doctors/neurologists still hold to the diagnostic protocol that says one cannot be definitively diagnosed with MS, unless there are mitigating lumbar puncture or evoked potential results, unitl there are TWO seperate and distinct symptom producing demyelinating events in the central nervous system, each lasting at least 24 hours and seperated chronologically. Of course, what this means is that everybody diagnosed with MS had a first original event, and many did not get diagnosed until a second, no matter what the MRI or symptoms looked like after the first . . .after that first event, they may get some sort of label such as acute disseminated encephalomyelitis (ADEM) or isolated demyelinating event (IDE). Most, though, eventually had a second event, or a progressive series of symptom increase, enough to "earn" the MS diagnosis.

I actually think this is particularly dumb, in that it often keeps people who've experienced one event from starting a medication trial that may prevent further events, or make the less severe--which after all, is what these meds are designed for.

There are people who get one large "attack" and never again another, though they may be left with some functional deficits, and in the absence of other obvious causes--and viral/bacterial prodromes can cause demyelinating episodes--it's rather uncertain what to call them.

I agree with dahlek that posting on the MS board here would be a good idea. I also think a look at the Liza Jane spreadsheets would be warranted:

www.lizajane.org

These spreadsheets were put together to be as comprehensive a series of possible tests for neurolgoical (and other) symptoms as could be imagined. They're good for tracking test results over time, to look for patterns, and also good for suggesting avenues doctors may not immediately think of.