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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Wow! That really stinks! I also went to so called "specialists" who told me it was my tmj, sinus problems, etc. and made me feel like I was crazy. Fortunately I gave a list of my symptoms to my GP (and she figured it out IMMEDIATELY) and sent me to my neuro - thank God! I think it's great that you are going to Cancun ! I can't wait to take a break - it seems like all I do is go to dr. appts and then home or the hospital, but I know that will change soon -I've got to keep believing that! Fortunately I've got a great hubby and son (he's 16) who have been really great, though they are scared. It's been really hard on them and I just feel weird having them take care of me - you know how it is......Well, take care and have a blast in Cancun!
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Originally Posted by MissyGirl
Oh yes, I was very very sick when I finally diagnosed. I'd weathered 2 mini-crises at home, had Heimlich done twice because of choking, etc. I went to 3 neuros right off who couldn't/wouldn't diagnose me so I got stubborn and stopped trying to find someone who'd diagnose me. I finally found the good neuro/clinic and have been there ever since.
I had thymectomy, and then REALLY got sick...ended up on steroids, IVIG, finally CC and then after a couple of years "poof" the MG went away. I still took the meds but felt very very good.
In 2004, I began trying to address some of the hormonal issues that have plagued me. By the fall of that year, I started having symptoms reappear, finally going full blown by October (on my freakin' BIRTHDAY!!!!) and I've been pretty much bad ever since. I've not worked much since 2001 and there's no way you could call my life "normal" in any sense of the word. HOWEVER, I work around it. I go on vacations, do stuff, etc. In fact I'm leaving for Cancun in the morning, double vision and all. I finally decided I couldn't wait around to get well to do the stuff I want, as I have a daughter who needs to do normal things as well.
Hang in there, keep posting and do your research!
Missy
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