Originally Posted by frogga

Heya

Firstly.. don't realy know what to suggest. It might not be spreading - i know that before it did go full body I used to worry every pain was RSD.... it could be that your compensating for your arm pain with your legs (how!?? i know).

washing - i cant bear a shower.... it hurts so much you just want to scream and scream and die.. so we gave up on them.. I either bath or have really soft bed baths.. like using a really soft sponge and filling a sink with hot water and shower gel and then washing (well. with me. being washed. ) you can also make a thing so that you can tie it to your forearm if thats easier - I used to have one so even though i couldnt hold it i could sort of do bits... hair - mum/ carer does it over the bath OR you could get it washed in hairdressers every week? (they are usually gd if you explain you cant wash your hair..). or do the other thing which is increase the desense. I know that with me we have cut down baths/ showers/ bed baths to twice a week to reduce the amount of pain i have to go through (its bad enough without adding water!) ... reckon that every 3 days is enough not to smell (esp when you can't move) also.... use antibacterial wipes for hands/ face etc.. then only dealing with damp not wet.. (so no water droplets).

have you densesed into gloves?? (i wear them as much as poss now to stop air touching me... I know. pathetic). If you have then wear them when cooking. I used to hate hot / cold and was well known for poking hot/ cold stuff with a wooden spoon along the counter to avoid touching it. (which is probaly not a good thing). you can get longer cutlery and stuff to avoid the heat from the food and also maybe you could put insulator tape on your pans?:?

anywy, hope you feel better soon or that you feel you are coping better soon!!

rxxxxx