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Old 08-03-2008, 10:40 AM
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NurseNancy NurseNancy is offline
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Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
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hi sunny,

i'm sorry for what you're going thru. and i'm sorry you're feeling so bad.
i would also go back to your pcp.
was your neuro exam abnormal?

after an abnormal neuro exam i was sent for brain mri in which i had several lesions. no vep's. no c-spine. no LP. i was dx'd by my exam, clinical picture and brain mri. then i sought a 2nd opinion just to be sure. this dr (MS specialist) wanted a c-spine mri (+) and an LP (+).

you might need a 3rd opinion. you might contact your local MS society for md referrals and for any MS specialists in your area. try to get copies of your records, or at least cd's of your mri's.

sit down with a notebook and make a timeline (dates) of the onset of your sx's (symptoms). this will all help any future drs you see.

i also think it's a good idea to do a c-spine mri. your pcp can order it, you don't need a neuro to do that. if you have some brain lesions it's best to cover all your bases.

try to bring a family member or friend with you to the appt as a 2nd pair of ears. or to write things down that are discussed.

you're your own best advocate. don't give up. this process is difficult i know.
keep pushing til you find answers.

please keep us posted.
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You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
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"Thanks for this!" says:
sunnyday (08-03-2008)