thanks to you all for taking the time and trouble to write.
It really helps a lot to have the support of those who have been through it or are still going through it.

i know ive started to feel a little crazy with not knowing what is going on with me and ive felt even worse when what seemed like the 'main guys' the neurologists are not knowing, saying one thing then another, it is so confusing.
I'm researching a lot lately and it is taking a lot of my time, i'm usually so upbeat and positive but this has really knocked me down.

I dont know what its like in the u.s but here in the u.k although it is national health service, it means a long wait inbetween appointments and scans, sometimes six months. I worry because my legs are weaker where i now use a stick and want to get on the right track for treatment.

Thanks for all your advice and suggestions,take care all and very best wishes.