Originally Posted by paula_w

To the orgs reading these comments, I would strongly keep in mind that this comes, not from the smiling faces you see with all the energy and good will pwps can muster up at conferences, but from the people sitting at home, many alone, who can't make it off the chair right now without crawling or suffering pain. These comments are coming from people who can barely type, whose shoulders are locked, whose mouths are caved in, who can't eat and have to worry about providing themselves with proper nutrition when they don't want to walk to the kitchen. From those who are lonely, who have nightmares, and then read about medical researchers paid to get industry off the hook when they make mistakes. From those who can't afford their meds. And sometimes we do wonder who the orgs really serve. Just as we wonder who anyone, with large amounts of money, really serve when we are not seeing results.
paula