Cheryl,
I think it's a good thing to have it documented also. They had my first phone call on their records from May when I had the beginning of this. The rep. said to call my doctor for a topical ointment if it was bothersome. I knew that wouldn't help so I didn't think it was necessary. I should have called my Neuro but thought the rep. knew what she was talking about. They even transferred me to their nurse so I could tell her.
It's just so darn irritating when you know that something is wrong with you and the professionals blow it off. You know first hand from your experiences.
I have been on 2 meds that have been taken off the market now...Zelnorm and Vioxx. Then had the Chantix prescription that I didn't take after hearing the dangers of it's side effects, thank heavens. I called Pfizer and got a refund on my prescription a few months ago with a letter attached that was basically saying it wasn't the drugs fault. I don't remember exactly what the letter said but they refunded my money in no time at all. That does not happen!
It's ridiculous to have a "one size fits all" attitude with these drugs since we are all different. Ages, gender, size, allergies and other health problems. It doesn't matter, just take the shot and if you have a reaction, it's surprising to the drug companies.
Avonex transferred me to this woman to make the report to the FDA in the first place. She cops an attitude that didn't go over well with me so she had to listen to me until I was finished talking.
I don't know why this happened but it shouldn't have happened. I have to deal with this pain until the Gabapentin kicks in and I hope it will help. I may have to live with this muscle and nerve pain that has nothing to do with MS but caused by a huge needle I was using trying to prevent progression of MS.
Thanks for your support!
I think I am getting cranky again. It was 106 yesterday and it is already 104 today so it's just miserable heat. I let my dog out long enough to potty and then get her right back inside. The A/C and fans are all on and I'm getting ready for my afternoon nap.
Hugs,
Becky
Quote:
Originally Posted by Av8rgirl
Becky
It's a good thing to have it documented. I am glad you stuck to your guns with the person who was taking the report.
I went through a similar thing with the Teva people when I had the reaction with Copaxone They kept telling me that severe fatigue wasn't a side effect of Copaxone. I told them it wasn't unless someone reported it and my neuro wanted it reported. She finally relented and took the report.
Same issue when I had the anaphylatic reaction to Zantac. The doc said no one is allergic to this stuff. Yep, they were right until then. They sent a drug rep from Glaxo out to test me. Had a pretty stringent protocol to find out if it was the drug or the coating. It was the drug! 
When people have reactions to medications and docs or bureaucrats don't believe you, you just have to stick to your guns to make them believe you. There is a reason why you are reporting these reactions. It's to help those who follow behind you.
Good for you Becky for sticking it out.  |