Quote:
Originally Posted by Natalie8
For myself I've decided the risk is worth it at least for a year, maybe two (but I'm not going to tell you I'm completely worry free but I think I will be able to manage it). Hopefully in two years some of the oral medications will be just coming out on the market and we will have a better sense of long term Tysabri use and how many more PML cases there will be. Then I can decide what to do then. Cause the interferons and copaxone are out.
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Very sound approach you have there....
I'm not on DMT at the moment but if my situation was different (I'm in a holding pattern with no symptoms at present, knock on wood) I'd probably be thinking along the same lines as you. Interferons and Copaxone are out, I'm waiting for oral meds, but if push really came to shove I might consider Tysabri short term. Enough people have gone 'off' the med with no predictable, serious complications for me to consider it a safe enough - if temporary - lifeboat. Initially, I thought no way - and most times, still feel that way (I want more long term data) but this disease has a way of knocking ones' conventional wisdom right off the block.