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Junior Member
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Join Date: Jan 2008
Location: Florida
Posts: 15
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Junior Member
Join Date: Jan 2008
Location: Florida
Posts: 15
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U B O's ?
A question please.........
Went to a neuro today and he looked over my Labs (blood work), Venus doppler of lower extremities, Carotid Duplex Scan, Transcranial Doppler Scan ( both the scans where looking for carotid stenosis and intracranial arterial tree or anything vascular in nature that could explain the lesions on MRI), X-Rays of lungs (because of the hx of Sarcoidosis), Everyone of those tests are normal !
The only thing that has come back abnormal are the (3) MRI's. (2) were done on a 1.5T and (1) on the 3T. All showing several lesions in the periventrivular, perivascular spaces within the white matter of the left and right parietal lobes and left frontal lobe. The neuro agrees that none of this is ischemic in nature (DUH!).
He then did the clinical test and the only thing that was not good was (as did another neuro) that when he taps the shin with the mallet, I am hyperflexic (?) and when I stood with one foot infront of the other with eyes closed, I could not keep balance.
After all that he said.....Well, you are a complicated case ( again i have heard those exact same words from 2 other neuro's in the past) because of having a dx of Sarcoidosis, The lesions could indicate either Neuro Sarcoid, MS, Or UBO's. I said "even though all other tests came back ok and the lesions tend to be in a MS area?"
So.....He says "Well for now I think I am just going to put this down as UBO's for now".
What do you all think about that? Should I "RUN" from him? Oh ya, I have not had an LP done because 2 neuro's agree that it would be a waste of time and money to do an invasive test like that just to get the POSITIVE results. That is because the LP results will show the same in both MS and Sarcoid. So it is not a usefull test for me.
Please tell me your thoughts. No one wants to give a definite dx of MS even though exclusion of tests, clinical exams, and MRI points to that because of having dx of sarcoid they think...Well maybe it COULD be neurosarcoid.
I am so frustrated. I do not know what to think.
Sorry so long,
Thanks in advance for your comments.
~Tonya
__________________
~Tonya
"I am not afraid, I was born to do this"
-Joan of Arc
If you realized how powerful your thoughts are,
you would never think a negative thought.....
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