Good points, Cayokay. I wouldn't have thought of that as health care availability (for such a serious condition) would not be a financial obstacle for people here.

So, would that be "true" limbo, or . . . .

Self-induced (sometimes by necessity) limbo?, or . . .

Unavoidable limbo?

It doesn't sound like that could be blamed on the doctors, per se' . . .

It does bring up a good suggestion though . . . 2nd opinions (for those who have insurance and money) should be sought from an up-to-date facility and experienced health care provider.

Cherie