Hi Beth,

I know you have experienced those wicked "spinal headaches", like me, and now you mentioned siezures. I've been wondering about what I have experienced is MINI-siezures too . . . but how did you know that's what it was?

Mine feels like there is "thunder" in my head, I feel dizzy/spun out and nauseous, and it occurs while I am sleeping (but the "thunder" wakes me partially). I haven't been able to find anything on the net about this, and only thought to mention the part about the dizziness/nauseous sensation to my doc. He suggested "positional vertigo" . . . but I've never felt sure about that explanation.

You have C-spine (and maybe brainstem) lesions, right?

Hope you get to feeling better soon with these new/resurrected meds.

Cherie