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Old 08-08-2008, 09:06 PM
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
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Hi

I received IVIG, had no issues with it and my insurance thankfully paid for it all. It depends on your policy. I did not have any noxious side effects, and I have issues with just about every drug I take. I just recently had to stop Plaquenil.

MCTD is one of those diseases where the insurance companies do get picky. It is approved and IVIG works, however it is 'off label' usage, so it is best if your diagnosis is one that indicates it is a neuropathy caused by an inflammatory etiology....there are many out there. OR if you have a co-diagnosis of Sjogren's Neuropathy, IVIG is more accepted, however, it is still 'off label'.

I PM'd you. I don't know if you get PMs as a visitor, but, anyway, I tried.

Last edited by cyclelops; 08-08-2008 at 09:25 PM.
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