Thread: My HiCy update!
View Single Post
Old 08-09-2008, 08:49 AM
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Hi Keri,

You "sound" so much more upbeat and undefeated since you've had this treatment. I still remember the months prior . . . and there is a huge difference in "our" Keri. I'm so happy for you, and I wish you continued success.

Now, what happens if you do not adjust to Copaxone? From what I recall, everyone who goes through HiCy/Revimmue is supposed to hop onto Copaxone after that. There must be some people that don't do well with this med . . . so then what? Will they rx an interferon, or ?

What I find interesting about this approach is that drugs like Tysabri are generally supposed to be recommened for people who do not do well on the standard therapies . . . and there are people like you that were approved for Tysabri on that basis. I know you hadn't tried the CRABs for long anyway, but what you tried included Copaxone, and it didn't "appear" to agree with you. Ironically, now you have to go back on it after Revimmune anyway.

HiCy/Revimmune is something I would seriously consider if my MS was very aggressive . . . but I wouldn't want to go on Copaxone after that. No offense against Copaxone, I just would (personally) prefer to not use a CRAB on an ongoing basis. How long do you have to stay on it, and what if you find you CAN'T take it?

All the best for continued success.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote