"How many times do you get po'd about all this?"

Not so much any more. I think not having to go to work has made considerable difference to my tolerance for this disease though.

It only REALLY gets to me when I am paralyzed, screaming with pain & electric shocks, with all over body burning, for weeks/months at a time. Then I am good and ready to pull the plug.

Otherwise, I am usually just thankful today is not like that.

You do mostly get used to it, crazy as that sounds . . . so long as you still have some semi-decent days anyway.

Cherie