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Old 08-09-2008, 10:36 PM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
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15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
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I personally haven't heard anything about Imuran, but I do know that it does take time for the thymectomy to take effect. I was told by my neuro and GP to expect anywhere from 6 mos-1 year....so hang in there! Tell Dallas to hang in there, too! I was also told that until I was officially "in remission" that there would be good/bad days/weeks, but not to give in to this disease and DO NOT GIVE UP HOPE! I hope someone who actually knows about that drug can give you some good advice. In the meantime, hang in there!
Quote:
Originally Posted by HiHo View Post
Hey all! Just thought I would drop in and tell you that my son was doing really well after his thymectomy...but I think things are starting to go downhill again for him. His eyes are very tired again, and today he starting complaining of weak arms and legs and he had his "sad" look about him again. The docs just started him on Imuran 2 days ago...what do you all think about it? They say for kids, it is much better than the long-term side effects of the Prednisone.
Thanks for helping, Heidi
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