Hi, everyone....I have Shy-Drager's disease, which I'm told is very rare and my neurologist tells me that there's "nothing he can do" about it. So for the past several months I've passed out anywhere from 3-10 times daily. My husband has been on vacation for the past 2 weeks and that's been nice; he's used to seeing me pass out and it's usually no big deal to either of us because it happens so often that we're used to it. However, although I've told my primary care doc and she didn't have much to say about it a couple of weeks ago, I was in my ophthalmologist's office a couple of days ago and it happened there. She hadn't seen it before and just totally freaked out. I don't remember much about it but she did want to call an ambulance to take me to the ER. I refused because, since it's such a frequent occurence, there was no point in it. And my pcp was on vacation so I just came home....poor doc was really scared. I guess I can see her point but it's really not anything to be that worried about. My husband will be back to work next week and I'll be alone again and it'll be happening with me by myself again. It's just that I guess others (besides my friends) aren't used to seeing it. Sorry it scared her so much. Maybe now docs will listen more. Even my neuro doesn't get that worked up about it. I don't know if there's really nothing that can be done about it or not. I wish that I could believe him but I'm not certain that I do. My old neuro left the practice without any explanation and I haven't been able to find him; I absolutely loved and trusted him. This one is only a D.O. and I, personally don't trust them. I just wish I could find the right neuro for me - one who I can truly trust and one I feel who has my best interest at heart. And one who doesn't always say that there's "nothing we can do".....I believe that there's always something that can be done. And don't we have to keep our beliefs/trust/hopes/faith up in order to keep on going????
