Quote:
Originally Posted by Lisa Galda
Hi. I am in the process of switching my med from copaxone to tysabri. I used to be on rebif and copaxone. I had horrible reactions and have to switch. I am thrilled it will be 1 time a month and very scared about the possible side effects. I live in South Jersey outside Philly and have two little guys ages 3 and 5. I also have a big guy age 39 (my loving and supportive husband). I have been on no medicine since July and hopefully will begin Tysabri in October. I would love any advice or tips. Can you drive there yorself for the infusion? Do you get nauseus? skin reaction? fatigued? infections? vaginitis? How do you deal? What do you take to combat it? Is vaginitis like a yeast infection? Do you eat before infusion? What type of skin rash? Does it itch or just look ugly? Does Benadryl help? Do you take vitamin supplements? Do you avoid crowds during flu season? I have a great support system, but I sometimes do not accept help well and am very independent. Any thoughts?
|
Welcome Lisa!
Lots of questions! I have MS and we have a terrific MS community here with lots of support. And many on Tysabri.
Once you get settled in with the MS Forum, you will find lots of answers to your questions. I think Alffe has already given you the link to our group!
As for answers about Tysabri, you will get lots of answers there, too. Everyone will react differently to the medication, which I am sure you have found with the ones you have already been on. The best way to find out is to try the medication and see how you will tolerate it.
I was on Tysabri and did fine unfortunately my insurance company decided to play doctor and thought otherwise.
After a year of appeals, I lost the battle and decided to apply for clinical trials and was accepted into one which I am still in. So just call me Lab Rat!
It's not a bed of roses, having this disease, nor finding a drug that will work for you. But having a positive attitude will do you more good than anything else, and even that's hard. Welcome...we're glad you're here but sorry for the reason.
