Thread: What's wrong with the PD community?
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Old 08-11-2008, 08:58 AM
paula_w paula_w is offline
In Remembrance
  
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
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Quote:
Originally Posted by DocJohn View Post
PLM is a positive service and contribution to the world, but like every online community, it's not for everyone. I've spoken to some of the people at PLM, including one of their senior researchers, and they are passionate about what all of that data may one day show or help inform future research. But we're not here to talk about PLM...

I agree that whatever is done here really should be an independent effort. Computing resources are so inexpensive nowadays, anybody can pretty much do anything of this nature with little or no cost.

The group mentioned is actually the late Tom Ferguson's e-Patient Scholars Working Group and we blog over at http://www.e-patients.net/

John
Thank you DocJohn - the White Paper exlains it all - outstanding reference for us here. We have all learned bits and pieces, but this puts it all together to describe what we are.

paula
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"Time is not neutral for those who have pd or for those who will get it."
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